NDIAG • Education • Advocacy • Support
Education. Advocacy. Awareness. Support.
A family-centered NDI resource hub built to make reliable information and community easier to find.
Nephrogenic Diabetes Insipidus Advocacy Group
Rare disease should never mean rare support.
NDIAG exists to help people and families affected by Nephrogenic Diabetes Insipidus find reliable education, practical resources, community, and a stronger voice in advocacy.
Start here
Looking for the right resource?
Learn about NDI, understand daily life, prepare for school and emergencies, connect with families, or explore how NDIAG is advocating for change.
Find Support & Resources →💧 What is NDI?
Understand NDI, AVPR, AVPR2, AQP2, acquired NDI, gestational DI, symptoms, diagnosis, and why early recognition matters.
Learn about NDI →🆕 Just diagnosed?
A practical starting point for families: questions for your provider, school planning, nutrition, emergency preparation, and community.
What's next →🚨 Emergency care
Build an emergency kit, use medical-alert information, prepare your phone's Medical ID, and keep your individualized plan accessible.
Prepare now →Community
Families deserve to feel understood.
NDI can affect far more than hydration. It can shape sleep, school, nutrition, toileting, appointments, travel, and the emotional load carried by caregivers.
NDIAG is building a place where families can learn, connect, share their stories, and advocate together.
#ShareYourRare →You may become a nurse, dietitian, pharmacist, advocate, educator, researcher, emergency planner, case manager, and comforter—while still trying to simply be Mom, Dad, Grandma, Grandpa, or the person who loves that child most.
Awareness & advocacy
April 27 • National NDI Awareness Day
Founded by NDIAG in 2026 to help communities recognize NDI, support families, and make rare disease visible.
Explore NDIAG advocacy →💙 Family Spotlights
Real NDI families sharing what life, diagnosis, advocacy, and hope look like for them.
Share or read stories →💚 Weaver Way Grants
The Lila's Legacy Grant and George Arthur Grant are in early launch stages, with more information coming soon.
Learn about the grants →📅 NDIAG Events
Meetups, awareness activities, community gatherings, and future events for NDI families.
See events →