NDIAG • Education • Advocacy • Support
Support & Resources
A growing directory of NDI families, rare-disease organizations, medical education, and community groups.
A growing directory of NDI, rare-disease, family-support, and community resources. Send NDIAG additional links as the resource library grows.
NDIF — NDI Foundation
NDI-specific patient and parent education, nutrition guidance, medical-alert cards, research, and support.
Visit NDIF →NORD
National Organization for Rare Disorders provides rare-disease information and support resources.
NORD: NDI information →Remember the Girls
Community focused on females affected by X-linked AVPR2-related NDI.
Visit Remember the Girls →Medical Complex Mamas
A community of more than 6,000 medical moms, created by NDIAG founder Kathryn Weaver to connect medical mothers and caregivers with understanding, support, advocacy, and community.
Visit Medical Complex Mamas →