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School & 504 Support for NDI Families

A parent-friendly starting point for talking with schools about water, bathroom access, medical needs, diet, feeding tubes, service dogs, transportation, and emergency planning.

📚✏️ Back to School With NDI/AVPR: 504 Plan Edition

A Section 504 Plan can document the accommodations a student needs to access education safely and equitably. For children with NDI, water and bathroom access can be medically necessary rather than optional.

Accommodations to discuss with your school team

💧 Unlimited water

  • Water bottle with the student throughout the school day.
  • No restrictions on drinking water.
  • Access during testing, assemblies, specials, recess, field trips, and transportation when feasible.

🚻 Unlimited bathroom access

  • Use the restroom whenever needed.
  • No penalties for frequent bathroom use.
  • Bathroom breaks should not be delayed.

🌡️ Heat precautions

  • Extra water access in hot weather.
  • Cooling or indoor breaks as medically appropriate.
  • Staff awareness that heat can increase dehydration risk.

🎒 Emergency supplies

  • Extra water.
  • Spare clothes and continence supplies if needed.
  • Medication, feeding-tube, or catheter supplies when applicable.

🍎 Dietary accommodations

  • Permission for medically necessary foods.
  • Low-sodium/low-solute meals when prescribed.
  • Parent notification about classroom food events when possible.
  • No food, drinks, treats, or rewards that conflict with the student's medical plan.

🩺 Medical care

  • Staff education about NDI and warning signs.
  • Individualized emergency action plan.
  • Prompt nurse/parent notification for vomiting, diarrhea, fever, inability to drink, or dehydration concerns.

⚕️ G-tube/device management

  • Trained staff when required by the student's plan.
  • Clean/private space for prescribed feeds, hydration, or medications.
  • Access to scheduled or as-needed hydration/nutrition according to medical orders.
  • Emergency supplies and clear instructions for dislodgement, clogging, leakage, or stoma concerns.

📖 Attendance & academics

  • Excused medical absences.
  • Time to make up work.
  • Flexibility after hospitalization or appointments.
  • Additional time when medically necessary.

🚌 Transportation

  • Water available during transportation.
  • Bathroom opportunity before long rides.
  • Transportation staff informed of emergency procedures.

🏃 Physical activity

  • Free water access during PE and recess.
  • Rest breaks.
  • Modified activity during illness or extreme heat.

🦮 Service dog accommodations

  • When applicable, the trained service dog is a medical aid, not a pet.
  • Access should be addressed across classrooms, transportation, activities, and field trips.
  • Staff should know not to pet, feed, call, or distract a working dog.
  • Plans should address water, relief, equipment, and emergency needs.

👩‍🏫 Staff education

  • Teachers and substitutes
  • PE and specials staff
  • Bus drivers
  • Cafeteria/office staff
  • Coaches and activity staff

Staff should understand what NDI is, why water/bathroom access matters, warning signs, and who to contact.

Every child is different

Some students need only a few accommodations. Others may need many more, including incontinence support, catheterization, feeding-tube support, mobility assistance, medication administration, or individualized medical care.

The goal of a 504 Plan is simple:

Remove barriers so a child can safely learn, participate, and thrive alongside peers.

This page is based on NDIAG's Back to School with NDI/AVPR: 504 Plan Edition post. It is educational and does not create a legal or medical plan. Work with your school team and child's medical providers.

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