NDIAG • Education • Advocacy • Support
NDI Family Spotlights • #ShareYourRare
A place for NDI families to share their stories, connect with one another, and remind the rare disease community that no family is alone.
#ShareYourRare
Every NDI family has a story worth hearing.
We're building a permanent collection of NDI family spotlights here on the website. For now, you can read the published family spotlights on the NDIAG Facebook page.
Read Published Spotlights →#ShareYourRare
Want to share your family's NDI story?
Tell us about diagnosis, daily life, advocacy, milestones, challenges, hope, and what you wish other NDI families knew.
Submit the Family Spotlight Application →More spotlights will be added to the website as they are prepared for publication.
Privacy reminder: Please only submit information and photos you are comfortable sharing for a public family spotlight, and review the Jotform's permission/consent language before submitting.